Fundraising event slated for child’s treatment
by Denise Strub
Aug 22, 2013 | 1679 views | 0 0 comments | 23 23 recommendations | email to a friend | print
The community is invited to participate in a fundraising event for three-year-old Tiser Lusk.

Tiser is the son of Daron and Mary Margaret Lusk of Shreveport, La., and the grandson of Lewis Lusk and Sherry Weeks of Cleveland.

Tiser suffers from Kernicterus, a rare neurological condition that occurs in some newborns with severe jaundice.

It is caused by very high levels of bilirubin. Bilirubin is a yellow pigment that is created in the body during the normal recycling of old red blood cells. High levels of bilirubin in the body can cause the skin to look yellow, which is called jaundice.

In some cases when there are extremely high levels of bilirubin in the body or the baby is extremely ill, the substance will move out of the blood and collect in the brain tissue. This can lead to serious neurological complications, including brain damage and hearing loss.

According to Tiser’s grandfather, an experimental treatment is being offered in Kansas City, which could reverse some of the effects Kernicterus has had on the boy.

“It’s a stem cell treatment and it has been very successful in China,” said Lewis, who added the treatment is expensive, about $100,000, and might not be available for his grandson until next August.

However fundraising begins on Saturday from 10 a.m.-5 p.m. at the American Legion on Rosemary Road.

Volunteers will be selling Boston Butts for $30, barbecue plates for $8, plus conducting a silent auction.

Lewis said there will activities for children, including bouncy houses, invites everyone to come out have some fun and help a child.